Archive for the ‘Autism’ Category
Posted by thecanvasgrey on January 14, 2009
From Encarta: the compulsive repetition of words spoken by somebody else.
From Wiki: Immediate echolalia causes the immediate repetition of a word or phrase. In some autistic and Asperger’s cases it may be a method of buying time to help process language. In an instance a child with autism is asked, “Do you want dinner?” the child echoes back “Do you want dinner?” followed by a pause and then a response, “Yes. What’s for dinner?”
From Alex: It helps me be calm until I think of what is next and sometimes I’m excited so I say it.
I love my Alex! He helps me understand!
Posted in Appreciation, Autism, autistic spectrum, Awareness, Children, Figuring it out, Grow, Hope, Kids, Learn, Life, Love, prayer, thankfulness | 1 Comment »
Posted by thecanvasgrey on July 16, 2008
I read quite a few blogs. I am trying to listen and speak when God leads and to this post on the Autism Blog I felt I must write this:
I’ve found that it isn’t the school district but the individual school that determines a successful outcome. My son was in his fourth elementary school by the time he was in the last part of kindergarten (he started at age three).
I’ve always tried to work with teachers who seemed willing but the truth always came out when they were unhappy about inclusion. All the moving around did hurt us a bit financially but I KNOW it has served my son well. He is now included and accepted by the staff (teachers WANT him in their class), the kids and the community. **a tear of joy** It also benefits by being involved with the school through activities, PTA and community/neighborhood functions.
I feel I must speak to the confrontational method of pursuit. Especially for those who are in smaller communities, this just IS NOT going to work and your child will suffer for it (even more than you think they already are). So be kind, treat people as you want to be treated, try their plan first (if compromising doesn’t work) and if it doesn’t work for your child, be kind when you make strong suggestions (possibly backed by the doctor) as to what you’ve found that works for your child and ask for changes. Be involved with showing how something isn’t or is working but give issues time to resolve on their own unless immediately detrimental.
Confrontational tactics should ALWAYS be the very last resort. I say this because I come across so very many well meaning parents who’ve pushed and shoved (those are the kids I’ve seen suffer the most).
By being kind, I’m always asked to be on committees, attend functions to represent special needs, etc. You know, flies and honey…THAT is where the REAL differences are made…having input from the get go.
Early on I had one principal come out and tell me at an IEP meeting that I needed to put my son in a different school. I thanked her, and I did, it was more than clear my son wasn’t going to get the support he needed there. I was thankful for her honesty, it was the best thing that ever happened to my son.
Posted in Appreciation, Autism, autistic spectrum, Awareness, Children, Family, Figuring it out, Hope, Kids, Learn, Life, Love, Media, Spirituality, thankfulness, Think about it, Truth | Tagged: Confrontation, confrontational, Inclusion, School | 7 Comments »
Posted by thecanvasgrey on May 6, 2008
I don’t pretend to be a doctor or anyone who knows all about things. I do know one thing that bothers me about some doctors who try to break us down into systems or machines. As if that is ALL we are as humans. As if we can eventually explain everything in the human body (or the universe) in the same terms as a machine or a systematic number equation to the finite.
When we decide to think that we know everything about how the brain, chemicals, genes, etc. relate to one another I wonder what we will use as the “model” machine? And exactly which mechanic will you trust to give you a tune up? What constitutes the tune up? Maybe the sci-fi movies aren’t so far from reality if doctors think they really know it already. We need the differences that we’ve developed.
Don’t we NEED differences so that the things I’m not good at doing, someone else can do and vice versa.
This is one small reason why I struggle about telling our story. I really don’t see us as any different than any one else in life. I love my son just as he is, I see my job as helping him to learn coping skills as opposed to changing him or his wonderful mind. Most of the time my son is one of the happiest kids I’ve had the pleasure to be around.
I’d written the previous before today (5-6-8). I’m having difficulty sharing which is completely foreign to me. But today I was blessed with a beautiful sight. I had to share.
As I walked to the school to register my son I saw five smiling, flapping boys come out of the building, one skipped, two others were talking in excited tones, one making happy sounds, another running toward the field. I saw a tall slender man walking quickly behind them. I smiled. I smiled wide and long and looked at them; feeling their happiness, feeling their freedom, feeling their joy at experiencing the day and a break from school work. I thought of the teacher, the joy this can bring him too or the concern it could give as to later in the day lessons. How blessed is this world for ALL these humans? How blessed that they get to know the joy of the day? How blessed I was to get to experience this joy from afar but with them?
Thank God for the students, thank God for the teacher, thank God for the day, thank God for humans.
Like Humans Do by David Byrne: http://www.youtube.com/watch?v=bzmZXYKmTt0&feature=related
Posted in Appreciation, Autism, autistic spectrum, Awareness, Children, Family, Figuring it out, Health, Hope, Kids, Learn, Life, Love, Spirituality, thankfulness, Think about it | 6 Comments »
Posted by thecanvasgrey on April 30, 2008
I invite you to read about our journey and learning experiences in hopes that it will help you or loved ones find themselves in similar situations. I hope and pray that you find comfort, peace and the positive aspects that Living with a Difference intends. I hope you I can tickle your funny bone along the way too!
I’ll be making the individual posts and then copy them here for the sake of continuity.
Posting this for our love of God, standing in faith, praying this reaches those that need and seek His love and peace.
Sometimes it is hard to know where to begin, so why not begin with the beginning!
The cast of characters: My husband is Hungry Hubby, Big Boy is my oldest son, Young Son is yep and me, I’m Wailing Woman. For more on how these names came about, click here.
LIVING WITH A DIFFERENCE – PEEING ON A STICK!
Peeing on a stick, how complicated could that be? Well for one, I can’t quite pee the way the stick chick in the illustration does it. Her stream looks to be one foot long and steady as she goes… mine…not so much.
I first try my normal position with my legs at the ten and two position but that produces a shower. So I rise to my gas station commando stance but I’ve already relieved too much and I’m chasing the small bursts with the stick until it seems completely wet. Well that experience sure didn’t seem to be clear, it wasn’t blue nor was it easy.
What? Negative. No, I just knew I was pregnant. I felt it. So I got a cup and peed into it (much easier for me) and dipped the second stick (the double pack was on sale). J Apparently the first stick didn’t get soaked with the hormone because this time it was CLEAR…I was pregnant!!!!!!
Hungry Husband and I can’t keep secrets very well. Especially when the news is good so we drove to my parent’s house and then to his mom’s house spreading the glorious news. After two years of trying we were going to have our first child.
I felt pretty healthy during my pregnancy. We got up nearly every week day and walked one to three miles before work. I had quit smoking and popped the prenatals. We continued to compete in CW dance competitions until I was at the fifth month. At 39, I still felt WAS young even though I was officially in the “at risk” zone of having a child. I enjoyed the pregnancy and marveled how my body changed. The doctor gave me a leave of absence five weeks before my due date because of swelling but apparently I didn’t have preeclampsia.
Fast forward two weeks, my water breaks, emergency C section because he was big and breach. “I see a boy butt,” the nurse exclaimed. We were elated! We missed the low Apgar numbers being tossed across the room. But the numbers were always going up and eventually everyone was happy. He peed on one nurse and she jokingly lamented about being peed on. She even wrote about it on the Apgar card (a souvenir). Aren’t we the lucky ones, to know he took his first whiz at 11:04 pm on his birthday!?!?! Now HE would be showing ME how to pee in a stream and hit the target!
Posted in Appreciation, Autism, autistic spectrum, Awareness, Children, Family, Hope, Humor, Kids, Learn, Life, Love, Spirituality, thankfulness, Uncategorized | 2 Comments »
Posted by thecanvasgrey on April 17, 2008
First, thanks to all of you who’ve been keeping us in your thoughts and prayers. I really feel them in my heart and soul. THANK YOU for them. I really do sit in thoughtful prayer for you as well. I’m a big giver so when I receive I tend to give back even more. Your continued thoughts and prayers of support are very appreciated. As we know more of the details I’ll share them. Right now we are in a holding pattern but circling the airport. ha!
I have several things that are pressing, several things that must come out, I’m compelled.
I’ve done a dozen or so posts on autism. I think highly of so many bloggers who are autistic or parents of autistic children. I respect them, their view of things, their frustration of things, their joy of things, their need to help others understand, agree, being able to learn and grow. Just knowing how nice it is to reach out to each other when needed is a wonderful thing.
In this age of “bi-polar-isms” I refuse to define my precious, sweet son by autism, nor will I. He is smart, loving, handsome like his dad (of course), very tall, a reader, into astrology, a thinker, a dreamer, he hums happy tunes, still likes to skip (me too…like Phoebe from friends), likes routine (like his dad), sounds just like his brother (vice-versa) when he talks, has an amazing memory, adores his third grade teacher, can easily entertain himself, becomes deeply involved with things he enjoys, can’t concentrate on things he doesn’t and more, more, more.
So what am I getting at??? I’ve been holding my son’s story close (odd because I share so easily) but I’m nervous it will define him. Or WORSE, that HE thinks that is how I define HIM.
God has been pushing gently at me from many directions and I had my AHA moment this morning, NO FEAR. I now know I’m to post it, I’m compelled to post it. In faith I will post it and pray that it reaches those that it is supposed to reach and help. In faith I will post it believing that my son will KNOW that autism is only a small sliver of who he is, something to help him in his life’s journey and that I love him more than words. Amen. Thank you God for love, mercy, all things seen and unseen.
Posted in Appreciation, Autism, autistic spectrum, Awareness, Children, Dad, Dreams, Family, Father, Figuring it out, Grow, Health, Hope, Kids, Learn, Life, Love, Mom, Mother, Nature, prayer, Religion, Spirituality, thankfulness, Think about it, Truth, Women | 10 Comments »
Posted by thecanvasgrey on April 10, 2008
Nicole Beurkens the Director of Horizons Developmental Remediation Center in Michigan asked me to mention that during the month of April for every new person who signs up for a free newsletter at www.horizonsautism.com her clinic will make a donation to a scholarship fund for parents who require financial assistance to access treatment.
I do this as an informational service and to be helpful, not as a recommendation.
I DO NOT RECOMMEND any individual treatment, place, etc. I do have links to a variety of autism websites for informational purposes.
I think each child and family are unique and could benefit from any number of people, places and programs.
education, read as much as you can as quickly as you can about similar situations.
early intervention if possible but it is NEVER too late!
deep breathing, for you, your child, your family, it helps!
at least a consultation with a neurodevelopmentalist.
one way all the way isn’t necessarily THE way, try lots of things to see what works for YOU!
read, reach out to others, use their experience to help yourself and your family (use ME)!
This is by far my favorite definition of autism because I find it the truth.
Above all, love is love is love. Everyone has difficulties in life we can rejoice about them and how we are different or lament about it. I ALWAYS choose to rejoice because I’m never bored, there is always something to do or learn. Thank God! I get to choose happiness!
Posted in Appreciation, Autism, autistic spectrum, Awareness, Children, Family, Girls, Health, Hope, Kids, Learn, Life, Links, Love, Media, Mom, Mother, Think about it | 9 Comments »
Posted by thecanvasgrey on March 18, 2008
I believe that life should be about what we CAN do. After all not everyone can run a race much less win it. Not everyone can focus for long periods of time to solve/work on the theories of time and space and how we can invent a worm hole. Nor are most of us able (in my case willing) to strut themselves among the red carpet/reality crowd (ick).
So in my corner of the world I am about what we are ABLE to do. Figuring out the big picture for our lives, sifting in desires, gifts, love, passion, responsibility, compassion, abilities, education, understanding, desired outcome and more. Then placing the pieces in order, minute by minute, day by day, week by week, year by year so that at some point we can see a masterpiece taking shape before us. Our lives…what we are capable of doing throughout the course of a lifetime.
I’m proud of both my kids. I think they are worth every minute of thought, work, effort, joy, heartache, sweat, tears, planning, change of plans, money, time, all of it…they are worth it all.
Sometimes there are moments of unexplained, unexpected, unknown gifts displayed before me and I am in awe. This is an example of that wonder and surprise from Big Boy last year at the age of eight.
He titled it “DRAGON”
Posted in Appreciation, Autism, autistic spectrum, Awards, Awareness, Children, Fun, Glow, Grow, Hope, Kids, Learn, Life, Love, thankfulness, Truth | Tagged: abilities, ability, art, crayon, devotion, drawing, Family, gifts, masterpiece | 9 Comments »
Posted by thecanvasgrey on March 17, 2008
Not just because it is St. Paddy’s Day…but by the by, Happy St. Patrick’s Day to you!
More importantly several things have happened of late that deem a celebration!
Big Boy (who is autistic) has had several leaps forward in a row!
He has learned to cope with the fire alarm sound (the latest one was his 3rd without problems). Yippee!
Last week he turned to READ MY FACE after something I said to see if I was joking or serious. HUGE!
He got a joke that involved a play on words!!!!!
Lastly, he and Young Son landed a Mario and Luigi stuffed toy (with help from Hungry Hubby) in one of their favorite games, Skeeball.
GOD, thank you…. I am so truly blessed!
Posted in Appreciation, Autism, autistic spectrum, Children, Grow, Hope, Kids, Learn, Life, Love, Mom, Mother, thankfulness, Women | Tagged: Autism, blessings, joke, luigi, Mario, skeeball | 2 Comments »
Posted by thecanvasgrey on March 10, 2008
Or does any one key fit anyone? Are brain problems just neuro related or are they psycho related or a mixture of both? How much of the environment plays into it? The things we eat, drink, amount of exercise, fresh air, good and bad bacteria, inside, outside, upside down…it makes my head spin. One thing is for sure, we, as humans, are in our infancy when learning about just one area and much less than our infancy as to how they intertwine, relate and what they need from each other to function in a healthy way.
But just for fun this site has some interesting tests for your brain.
Posted in Appreciation, Autism, autistic spectrum, Awareness, Figuring it out, Grow, Health, Hope, Learn, Life, Links, Love, Media, thankfulness, Think about it | 2 Comments »
Posted by thecanvasgrey on February 11, 2008
Posted in Autism, autistic spectrum, Awareness, Children, Family, Health, Hope, Kids, Learn, Life, Love, Mom, Mother, Stay at Home Mom, Truth, Women, Work at Home Mom | Leave a Comment »
Posted by thecanvasgrey on February 7, 2008
FightingWindmills turned me on to a post at CheeseSlave.
After reading through I just had to ask some questions of us all:
I’ve read something like this on more than a few topics and not just about Monsanto (see the open letter to Hillary at Cheeseslave).
Cheeseslave says “I’ll have to learn more about Obama but I have a sense that he is the latest Prius they are trying to roll out to keep us in the dark.”
Cheese, you are right about this. It is all a smoke screen. This open letter is just the TIP of a huge iceberg on so many things it makes my stomach churn.
Deb, you are right about the FDA. Pressure for drugs to make us live forever, you know. **wink, wink, nudge, nudge**
And there is NO truth in advertising anymore…okay, there is half truth in advertising, leaving out critical information that could steer you to um, EATING YOUR VEGIES or a VITAMIN deficiency…and away from their product du jour.
I could go on and on about what is wrong because there is so much. Unfortunately ONE PERSON (a new president) isn’t going to fix it all.
It has to be a huge change across our nation, it has to be an outcry so long and so loud from millions upon millions before the kind of change needed is going to happen. A wave of change has started, it needs nurturing and growth. So that 4 to 8 years (or even 12) from now the people who caught the wave can be in positions (legislative, judicial) to support and uphold the changes that NEED to be made in the STATES and in FEDERAL governments.
That is a lot of people needed to ride the wave much less keep the energy of the wave high…is it YOU? Are you willing to commit to politics, start in your community, local, state levels? Holding offices of change in your area? Are you willing to get into politics at the state or national level to support a person in a presidency that will need the support to really change things?
A president can’t do it alone. Are you willing?
I’m asking these questions thoughtfully…not antagonistically.
Posted in Autism, autistic spectrum, Awareness, Children, Dreams, Family, food, Glow, Grow, Health, Hope, Kids, Learn, Life, Links, Media, Miracles, Nature, Politicians, Politics, Think about it, Trends, Truth | Tagged: Barack, change, clinton, congress, federal, forks, Hillary, Huckabee, John, knives, legislature, local, McCain, Mike, movers and shakers, obama, Paul, president, Ron, senate, spoons, state, taxes, Trends, wave | Leave a Comment »
Posted by thecanvasgrey on February 5, 2008
LOVE I nclusion F ellowship E quality
I’m a pupil of life.
Pupil as in learner AND pupil as in the center transparent, black part of an eye (I).
The cornerstone of my learning life is LOVE, for without it I am nothing. I exist, I am seen, I am because I love others and I am loved by others.
This is the perception of understanding that I insure through my persistance to love others through my inclusion and fellowship with all because they are equal to me through love.
Do you hear what I hear? Do you see what I see? Do you know what I know?
LOVE is the cornerstone.
I’m done now. 😉
Posted in Appreciation, Autism, autistic spectrum, Awareness, Dreams, food, Fun, Glow, Grow, Health, Hope, Learn, Life, Love, Miracles, Nature, Spirituality, thankfulness, Think about it, Trends, Truth | Tagged: believe, endure, Hope, kind, Love, patient, trust | 4 Comments »
Posted by thecanvasgrey on January 28, 2008
In case you haven’t heard: Parade.com is looking for autism stories. I know several of us have some stories to tell, others of you can tell them better than I. I’d love to know if you send one in!
Posted in Appreciation, Autism, autistic spectrum, Awareness, Children, Family, Hope, Kids, Learn, Truth | 5 Comments »
Posted by thecanvasgrey on January 23, 2008
A friend and fellow blogger, Fighting Windmills, talked about IQ on her blog the awhile back and got me to thinking and we know how dangerous that is!!! HA!
Junk the SOLs, they are touted as the equal to SATs, ACTs and pass/fail tests. Too much emphasis on the test and NOT what kids are actually learning…they are learning to memorize answers. The pressure on the teachers, schools, kids is UNBELIEVABLE. If you have school aged kids you’d know what I’m talking about. Walk the halls the weeks before and during testing and you can cut the tension with a knife.
Check out the clip from The Colbert Report featuring a chat with Malcolm Gladwell who explains why IQ tests don’t really tell us about intelligent. Gladwell said that IQ tests may show that Abe Lincoln wasn’t too bright. So there is one point for dumping tests, in my book! I wish this segment was longer. Gladwell has captured my interest in his thought process and I want to know more…I know, I’m a brainiac!!!
I think there are different type of IQ/brain types. I think EVERYONE has a place and a talent/IQ for something…even if it is teaching us how to understand them. Everyone has something to contribute, everyone has a gift or special purpose, it takes us all to make the world go round! How boring would it be if we were all the same, liked the same things, wanted the same things, discussed the same things, constantly fought with everyone that was different…what a waste of our most valuable commodities…time and energy!
Tests never tell the whole story nor is everyone great at expressing themselves through tests. Tests don’t tell the whole story about the capabilities, capacity or quality of learning, it is a snapshot of who can remember something and regurgitate in under pressure. It’s proven that those that didn’t get good sleep, feel well or eat well before a test perform lower than a “good” day. Testing isn’t a true representation of the TOTAL picture.
The SOLs should be removed because the pressure on everyone isn’t worth the false sense of “No Child Left Behind” (I do like the thought…not the process designed to promote the thought).
I’m done now! 😉
Posted in Appreciation, Autism, autistic spectrum, Awareness, Children, Glow, Grow, Health, Hope, Kids, Learn, Life, Links, Media, Politicians, Politics, Stress, Think about it, Trends, Truth | 2 Comments »
Posted by thecanvasgrey on January 22, 2008
Something to make your day!
Thanks Bev for sharing this with us!
Posted in Appreciation, Autism, autistic spectrum, Awareness, Children, Dreams, Fun, Glow, Hope, Kids, Learn, Life, Links, Love, Spirituality, thankfulness, Think about it | 2 Comments »
Posted by thecanvasgrey on January 7, 2008
Coincidence, something that happens by chance in a surprising or remarkable way.
Happenstance, a chance occurrence or event.
Deja vu, avant de faire, to see it before, I’d already seen it.
Posted in Appreciation, Autism, autistic spectrum, Awareness, Learn, Politicians, Politics, Spirituality, Think about it, Truth | 5 Comments »
Posted by thecanvasgrey on December 18, 2007
I’ve been busy compiling some information to share in the new year about health (since that is when we all think about it, AFTER the big gorgefest) and came across something that is worth a look by EVERYONE. I’ve got the links to the articles listed. I PROMISE you won’t be disappointed if you read this information.
What your body is trying to tell you:
Hair (I’d LOVE for my hair to gray like that)
Nails (I thought I knew about nails…well apparently not everything)
Tongue (a little tongue hair never hurt anyone)
Urine (people of middle age…unite!)
Bowel Movements (MUST READ, especially if you suspect your child has a problem)
Sally Wadyka for MSN Health & Fitness wrote these and did an excellent job. Quick, consice information about a look at the overall health of your body.
***BEGIN WITH THE END IN MIND***
Posted in Appreciation, Autism, autistic spectrum, Awareness, Children, Grow, Health, Kids, Learn, Nutrition | Tagged: Autism, autistic, body, bowel movement, celiac disease, hair, Health, listen, nails, tongue, urine | 3 Comments »
Posted by thecanvasgrey on December 3, 2007
After a good healthy step away from my last post and thinking it all through (here is another article) I think the inclusion of people who believe that vaccines have something to do with autism on the committee would be helpful. Actually, I would be suspicious of a committee that DID NOT include people with this view.
Here’s what else I think in no particular order:
I don’t think anything should be over looked or underestimated, whether genetic or environmental.
I think it is (thankfully) about time to have this type of study completed.
I think it would benefit the committee to investigate more than just this particular group of children. However I’m thankful it is nationwide and relatively comprehensive from what I’ve read.
I’m more than thrilled that there seems to be a diversity of individuals within the committee including an adult autistic person (autistic adults are a wonderful resource).
I think there is a genetic disposition whether it is a combined set of specific genes or a recessive gene that has been magnified from an environmental source.
I think there is some type (not Celiac Disease) of nutritional or digestive problem that is symptomatic of those who are on the autistic spectrum OR an indicator of those who have a recessive gene OR the vaccines may play a roll in exacerbating digestive problems of those with this gene.
I think autism is a web which may take us decades to unravel completely, if ever.
What do you think?
Posted in Appreciation, Autism, autistic spectrum, Awareness, Children, Grow, Health, Hope, Kids, Learn, Life, Love, Media, Mom, Mother, Nutrition, Politics, thankfulness, Think about it, Trends, Truth | Tagged: Autism, autism act of 2006, autism committee, autism spectrum, autistic spectrum, celiac disease, digestive problems, genetic autism, vaccines | Leave a Comment »
Posted by thecanvasgrey on December 1, 2007
Posted in Autism, autistic spectrum, Awareness, Children, Family, Grow, Health, Hope, Kids, Learn, Life, Love, Media, Miracles, Mom, Mother, Stay at Home Mom, Think about it, Truth, Women, Work at Home Mom | 4 Comments »
Posted by thecanvasgrey on November 21, 2007
I’ve been wondering and wondering when I was going to find an article, blog, someone in the media to point out the obvious ….
AUTISM….TOYS with lead from CHINA…..CONNECTION???????
Ding, ding, ding, ding
Okay, don’t beat up on me…this is a bit of tongue in cheek…but not many out there are writing about this.
Posted in Autism, autistic spectrum, Awareness, Children, Grow, Health, Hope, Kids, Learn, Life, Links, Love, Media, Stay at Home Mom, Stress, Think about it, toys, Trends, Truth, Women, Work at Home Mom | Tagged: Autism, autistic spectrum, Awareness, china, Health, help, lead, Media, toys, Trends | 5 Comments »